Alert - Time Running Short for Independent Living Center and Home Accessibility Funding

From the New York Association on Independent Living ...

We are asking you to help us secure inclusion in the final state budget of additional funding for Independent Living Centers and the Access to Home program. We have learned that one of the big issues holding up the budget has been agreed on. We have limited time to make our voices heard as final details are negotiated.

We are still strongly advocating that ILCs be included in the human services cost of living adjustment (COLA) being negotiated by the Governor and Legislature. The work of ILCs is aligned with that of other human service and disability providers receiving a COLA. ILCs compete in the same labor market, and have the same difficulty in recruiting and retaining staff.

We are also close to securing an increase to Access to Home in the state budget. The program is currently only funded at $1 million statewide, serving only 80 households per year.

We need you to call the Governor and leaders in the Legislature to include ILCs in the human services COLA and an increase for Access to Home.

Take action and make these 3 calls:

  • Governor Hochul at 518-474-8390

  • Senate Majority Leader Andrea Stewart-Cousins at 518-455-2585

  • Speaker of the Assembly Carl Heastie at 518-455-3791

Sample script:

"Hello, my name is (Your Name). I'm calling to ask that your office support two important disability priorities in the state budget. First, the inclusion of Independent Living Centers in the human services Cost Of Living Adjustment (COLA). My local ILC is an important part of the community and they need more funding. Second, we need to do something about accessible housing for people with disabilities and older adults. Increasing funding for Access to Home would really help, if you could pass along the message that Access to Home funding is desperately needed in the budget. Thank you."


If you are interested in disability advocacy issues like this one, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com

518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Alert - New York State Equal Rights Amendment

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The following alert is from the New York Association on Independent Living:


From our partners working on the NYS Equal Rights Amendment:

Join us as we advocate for the NYS State Equal Rights Amendment which would explicitly prohibit discrimination based on a person’s ethnicity, national origin, age, disability, and sex — including their sexual orientation, gender identity, gender expression, pregnancy and pregnancy outcomes in the NYS Constitution.

With so much of the country turning back the clock on our movement toward justice, it is imperative that New York has a constitution that protects all New Yorkers from discrimination.

TELL LAWMAKERS: New York State must pass an Equal Rights Amendment that reflects true and lasting equality for all of our communities, including people with disabilities.

Click here to take action today!

Then share with your friends!

We must pass an Equal Rights Amendment worthy of the 21st century that protects us all.


If you are interested in disability advocacy issues like this one, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com

518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Alert: We Still Need Fair Pay for Home Care!

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The following alert is from New York Caring Majority

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“Governor Hochul's action on home care worker wages in this year's budget does not go far enough to address our state's worst-in-the-nation home care shortage.”

If you care about the availability and reliability of home care for elderly and people with disabilities, click the link below to take action …

Take Action: We Still Need Fair Pay for Home Care!

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If you are interested disability advocacy issues like this one, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com

518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Alert - The Home Care Transparency Act

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Alert in bold white letters on a red background

The following alert is from the New York Association on Independent Living, (NYAIL) …

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Make two calls today! Pass the Home Care Transparency Act!

We didn’t win full Fair Pay for Home Care in this year’s budget. All of us in the Caring Majority know that the home care crisis will continue to grow - and we need hard data to back us up in the continued fight for Fair Pay.

The New York State Department of Health collects data on the scope of the home care crisis that they have kept behind closed doors for too long. It’s time for this information to be made public so that we can show where changes in the system are most needed.

Take action TODAY to help us pass the Home Care Transparency Act (A8173C / S7372-B) this session.

CALL LEADERSHIP NOW!

  • Senate Majority Leader Andrea Stewart-Cousins: (518) 455-2585

  • Assembly Speaker Carl Heastie: 518-455-3791

Script:

Hi, my name is XXXX. I want to thank [NAME OF LEADER] for their work addressing the home care crisis in the budget this year. As we know, New York still hasn’t fully addressed the home care shortage and it is likely to get worse in the coming year. I’m calling to urge [NAME OF LEADER] to place the Home Care Transparency Act A8173C/S7372-B on the agenda of the Rules Committee so that it can be brought to the floor for a vote. This Act would require the Department of Health to publish data on a quarterly basis on their website regarding Medicaid-funded home care usage rates and the number of authorized hours people can’t fill. Lawmakers, advocates and the public need to know the level of need in order to fully assess the scope of the home care crisis and determine needed changes to the system. Can we count on [NAME OF LEADER] to add A8173C/S7372-B to the Rules Committee agenda this session?

We need transparent home care data demonstrating the level of the crisis we face as one more formidable tool in our tool belts as we continue to fight for Fair Pay for Home Care and investment in home care.

With gratitude for each and every one of you in this determined movement,

Zahara Zahav, Organizing Director, JFREJ I NY Caring Majority

Gemma Calinda, Hudson Valley Organizer, Hand in Hand I NY Caring Majority

Julia Solow, Lead NY Caring Majority Organizer, Hand in Hand I NY Caring Majority

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If you are interested disability advocacy issues like this one, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com

518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

2022 New York State Budget Results

Alert in bold white letters on a red background

The New York State Budget is done. Here is an Associated Press article summarizing some of what the budget will and won’t include:

NY lawmakers finalize $220B budget, boosted by federal funds
Marina Villeneuve, Press-Republican / Associated Press - April 9, 2022

And here is an update on some of the disability-related aspects of the new New York State Budget. Although the budget falls short in several important ways, we have made some solid strides that will benefit the North Country region as well as the State. The North Country Center for Independence remains focused on addressing inequity as we move forward …

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From the New York Association on Independent Living, (NYAIL):

Below is an overview of the issues we worked on throughout the budget process. We had some wins and some disappointments. Thanks to everyone for everything you did to help advocate for the below important priorities over the past few months!

Independent Living: Funding for the network of ILCs has been increased by $1.6 million to $16 million. This is what was originally proposed by the Executive.

Health / Medicaid

Home care worker wage increase: As previously reported, Fair Pay for Home Care was not included in the final budget. Here are the final details for the wage increase that was included:

  • As of 10/22 home care workers will receive $2 over the minimum wage.

  • As of 10/23, home care workers will receive an additional $1 over minimum wage.

There are concerns this wage increase will push some workers over the benefits cliff, making them ineligible for programs like Medicaid without providing a significant enough wage increase to lift them out of poverty.

Unfortunately, directed payments to providers were not included and so funding will go to the plans. We will advocate with the state over implementation concerns.

Overtime: For CDPA under managed care, providers will be able to bill for over time! This does not appear to include fee for service. However, the ability to bill for over time is huge.

Bonuses: It does not appear home care workers are receiving a bonus.

Medicaid eligibility for aged, blind, and disabled: The income limit was increased to 138% of Federal Poverty Line (FPL). This brings the income eligibility up from 87% FPL to the levels applied to all other Medicaid applicants. The asset limit was not removed as advocates pushed for, but it will be increased by about 50% in January, 2023.

Medicaid Global Cap: The final budget keeps Governor Hochul’s original proposal to keep the cap with a new formula. Pending Federal approval, Medicaid Global Cap shall not exceed the annual growth rate projections within the National Health Expenditure Accounts produced by the office of the actuary in the federal Centers for Medicare and Medicaid services for the preceding five years. While this is expected to be an improvement of the current formula, it is still an arbitrary cap that has kept Medicaid rates low and services underfunded

Rate increase: The final budget includes the 1% across-the-board increase for Medicaid providers

Kendra’s Law: Kendra’s Law was extended for 5 years. Under the law, there are a few circumstances under which a person can be ordered to undergo court-ordered treatment. The one newly added and which is of most concern is for individuals who have an expired court order within the last 6 months and who is experiencing a significant increase of symptoms. If the director of community services who previously oversaw the court-ordered treatment determines such symptoms limit one or more major life activities, they can be referred for AOT.

The director of community services Must coordinate an evaluation by a physician. If the physician determines it is necessary, they must have assessed the person within 10 days of the hearing and must testify in person or remotely to the need for such an order. Must be determined to be clinically necessary and the least restrictive option.

Managed Care Procurement: The final budget does not include a procurement process for managed care organizations. Instead, it includes a study. The study reviews and makes recommendations concerning the status of services offered by managed care organizations contracting with the state to manage services provided under the Medicaid program. Shall be for the purpose of informing the development of a plan to reform the delivery of services offered by managed care organizations in the Medicaid program. Report is due by 10/31/2022.

Consumer Directed Personal Assistance Program: Repeals the CDPA RFO and instead directs DOH to enter into contracts with RFO applicants that meet the minimum requirements of the RFO and were serving 200 consumers in NYC or 50 consumers in upstate regions at any time between 1/1/20-3/31/20. This means all ILC FIs will be able to continue providing FI services.

Aging

Long-Term Care Ombudsman Program: Funding increased by $2.5 million. NYAIL and others have been pushing for a significant amount of increased funding for this program for years since it is so under-funded. While this is not the amount we were seeking, this additional funding will allow providers to increase the number of staff serving people living in LTC facilities.

Housing

Access To Home: Level funded at $1 million. This is deeply disappointing given that both houses proposed increasing the funding for the program and it has been underfunded for so long.

Government Operations

Open Meetings Law: Provides a framework for allowing remote participation, but does not require it. A quorum must be present in person at the physical meeting location and they must: 1) adopt a local law or resolution authorizing the use of videoconferencing, 2) have established written procedures governing member and public attendance, 3) ensure that members of the public body can be heard, seen and identified, while the meeting is being conducted 4) record via meeting minutes which members participate remotely 5) inform public via meeting notice re option for videoconferencing 6) record the meetings and post on the website within 5 business days 7) allow for real time public participation. Also includes language that open meetings of any public body that are broadcast or use videoconferencing must be fully accessible.

Elections: College campuses with 300 students registered to vote at that address will be directed to work with the local Board of Elections to establish a polling site on campus. NYAIL supported this proposal which was included in the final budget.

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If you are interested this or other disability advocacy issues, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com
518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Alert - Join advocates in Albany Monday to fight for Fair Pay!

Alt text - alert in bold white text on a red background

This update is from the New York Association on Independent Living

The Caring Majority has had quite a week, and though the budget was supposed to be done today, the fight is not yet over. Monday is going to be big, and we want you there.

The budget was supposed to have passed by now, but it has been delayed to early next week. Last night in Albany, instead of giving up, going home, and turning it in, we turned to each other and we saw how ready each and every one of us is to keep fighting for each other.

Will you join us on Monday, April 4 at 12 PM, in Albany, to be together in the final moments of this fight? RSVP here.

This last week, we have taken multiple actions remotely and in person every single day.

You may have seen that 3 of us were arrested on Wednesday for refusing to leave the Capitol until Fair Pay for Home Care is in the budget.

Then, last night, 12 of us said, we aren't leaving either. Fair Pay for Home Care is life or death, and Gov. Hochul needs to understand that.

What we are willing to give to this fight does not come out of nowhere. It comes from our relationships with each other, our dedication to one another's dignity and freedom, and to our own, it comes from the stories that every single one of you have shared about why we must do this.

And so yes, our bodies are tired, but our spirits are stronger than ever.

Join us in Albany on Monday, and if you can't be there, join us virtually and spread the word as far and wide as you can.

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If you are interested disability advocacy issues, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com
518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Alert - Call today to ensure Access To Home is included in the final budget!

Alt Text: Alert in bold white letters on a red background

Inaccessible housing is one of the biggest barriers for people seeking to live in the community. Unfortunately, our existing home modification program, Access To Home, has been severely underfunded at a mere $1 million for the past several years. This has left many parts of the state unserved and has resulted in years long waiting lists. In 2018, only 34% of counties received funding for Access To Home, leaving most of the State unserved.

Further, if Access To Home was available statewide to eligible households who need home modifications, it would enhance the effectiveness of other programs like the Olmstead Housing Subsidy and Open Doors, which are designed to help people leave institutions or prevent unwanted and unnecessary institutionalization.

The Senate and Assembly both included a $1 million increase in their budget proposals. This would double funding for the program. This funding could make a big difference for people looking to remain in their homes and stay out of nursing homes!

With only a few days left in budget negotiations, we must make our voices heard on this critical issue today!

What You Can Do:

Make four phone calls today!

  • Call Housing Chair, Assemblyman Cymbrowitz at 518-455-5214

  • Call Senate Housing Chair Senator Brian Kavanagh at 518-455-2625

  • Call Speaker Heastie at 518-455-3791

  • Call Senator Stewart-Cousins at 518-455-2585

Say: “Hello, my name is ___ and I am calling to urge you to include the additional $1 million proposed in the one house budgets for Access To Home in the final budget. I am disabled and I desperately need help making my home more accessible. There is no available funding to get this assistance, and without it, I can’t leave my house/leave a nursing facility. Please help me stay in my home by ensuring Access to Home receives the additional $1 million in funding in the final budget”

For ILC staff:

“Hello, my name is ___ and I am calling to urge you to include the $1 million in additional funding as proposed in the one house budgets in the final budget. The organization I work for helps people with disabilities leave nursing facilities and avoid institutionalization. However, many of our consumers need accessible housing, but there is no funding to help them get home modifications. Access To Home isn’t available here / has a very long waiting list. If Access To Home was funded appropriately in the one house budget, it would make a huge difference in the lives of many seniors and people with disabilities in our community.“

Background:

Access to Home is an important program administered by NYS Homes and Community Renewal (HCR) that provides funding for home modifications to allow people with disabilities and older New Yorkers to stay in their homes and out of costly institutions. For many people, the addition of a ramp to their front door makes the difference between being able to leave the house and being homebound. The Independent Living community advocated vigorously for the State to create Access to Home to help alleviate the housing crisis for people with disabilities in New York by assisting low and middle-income individuals and families to make home modifications. Yet, Access to Home was cut by 75% several years ago under the Cuomo administration. Ever since, Access to Home has been funded at a mere $1 million statewide, leaving many parts of the state without the program and resulting in years long waiting lists.

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If you are interested this or other disability advocacy issues, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com
518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Alert - Help Get Fair Pay for Home Care Included in the Final Budget!

Alt Text: ALERT in bold white letters on a red background

The full legislature and every heart in New York State is behind Fair Pay for Home Care - but Governor Hochul has yet to support this critical budget priority. The budget is typically finalized by April 1st and the home care crisis cannot be put off any longer.

Here is how you can take action with the Fair Pay for Home Care campaign during these last few days before the budget is final:

If you can't find home care for yourself or someone close to you due to the low wages, add your name to a 30+ ft long list of hundreds of New Yorkers who can't find home care. We will use this banner of names and our stories in public demonstrations around the NYS Capitol as we put everything we've got into the fight for Fair Pay for Home Care.

Join us for a big rally at the Governor’s Mansion in Albany on Wed, March 30th at 12PM! This will be one of our last big in-person pushes and we need all hands on deck. RSVP here!

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If you are interested this or other disability advocacy issues, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com
518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Alert - Call today in support of Fair Pay for Home Care!

Alt text: ALERT in bold white letters on a red background

Today, people with disabilities from around the State are convening in Albany at the NYS Capitol to call on Governor Hochul to include Fair Pay for Home Care in the final budget.

Fair Pay for Home Care will address the nation’s worst in the nation home care crisis by increasing wages for home care workers to 150% of the minimum wage. Paying workers a living wage will address the home care crisis by helping bring more people into the field and will help keep the workers you already have from leaving for a better paying job. With less than two weeks left in the budget process, we must all act today to ensure this makes it into the final budget!

What you can do:

1. Support our efforts by calling Governor Hochul today and urge her to include Fair Pay for Home Care in the final budget!

Call Governor Hochul at #518-474-8390. Press 3 and then press 2 to speak to a person.

Script:

“My name is [your name] and I am calling to urge Governor Hochul to include Fair Pay for Home Care in the final budget.”

[You can then give a brief personal reason, or explain the following:]

“Seniors and people with disabilities are stuck in nursing homes or in unsafe conditions because too many of them are unable to get the home care they are approved for because there aren’t enough home care workers. Fair Pay for Home Care would solve this crisis by paying workers a living wage.”

2. Join our efforts on social media. A toolkit is available with sample text and instructions on how you can help.

Additional ways to get involved:

Wednesday, March 30th: Fair Pay for Home Care Final Push, Albany, RSVP HERE

Stay in the loop and get the latest updates by joining the Caring Majority’s weekly campaign check-in Wednesday at 5:30PM. RSVP here for the ZOOM link!

Alert: Share your home care story today!

Alert in bold white letters on a red background

This alert comes from the New York Association on Independent Living and NY Caring Majority

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We need your stories to show the real impact of the home care crisis on the lives of disabled New Yorkers across the State.

Legislators are calling us asking for more stories about why their constituents need Fair Pay for Home Care. We need you to take 5 minutes to share your personal story today by filling out this form.

Legislators need to hear why you need fair pay 4 home care. Share your story today! #FairPay4HomeCare.

Why do you personally need our movement to win Fair Pay for Home Care, winning a living wage for home care workers and ending the workforce shortage?

We are hearing from legislators that what they need to advocate for us is to hear the personal impact and experiences of those directly impacted by the home care workforce shortage and low wages. Share your story here.

Stories are our organizing superpower.

Over the last couple weeks, leaders have shared their stories at budget hearings across the state about what it is like to live without adequate home care or wages, and those stories, as always, are working.

We are securing more co-sponsors, but more importantly, we are securing more champions who are willing to stand up and be as loud as we need if we are going to win.

Take 5 minutes to fill out our storytelling form. Then think, who do you know who is unable to get out of a nursing home due to the home care crisis? Who is stuck at home without the long-term services and supports they need to live safely and independently in the community? Let's reach out to those folks and help them share their stories as well! Can you help them fill it out over a phone call if needed?

Your stories are how we will win.

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If you are interested this or other disability advocacy issues, contact Colleen Downs, Systems Advocate at:

colleen@ncci-online.com
518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.